AGENCY: Department of Health and Human Services. Utah Public Health Laboratory. Newborn Screening

SERIES: 21951
TITLE: Case management data files
DATES: 1982.
ARRANGEMENT: Alphanumerical

DESCRIPTION: State statute 26-10-6 (1)(a) (b)(i)(ii) requires each newborn infant to be screened for phenylketonuria (PKU) or "other metabolic diseases which may result in mental retardation or brain damage". These records are in an electronic format. They contain screening results sent to the Newborn Screening Program from the Newborn Screening Follow-up Laboratory. This begins the program's intervention and tracking of individuals. The electronic charts document all medical information and actions taken in identifying individuals whose laboratory results were abnormal, inconclusive, insufficient quantity for testing, unsatisfactory, or which identified an individual as having had a transfusion. Some individuals' tests may require further confirmation. Additional confirmation tests are performed by laboratories other than the Newborn Screening Laboratory. The data are used to contact providers and families, to coordinate confirmation activities, to provide education, and to identify final disposition. The system automatically tracks and gives notice of specific action to be taken (call or letter), when that action is due or overdue (not received into the system), and who needs to be notified of that action. All medical charting is completed and stored electronically. Diagnostic laboratory testing and diagnosis is also entered and stored.

Data may include the following information: type of specimen; kit ID number; accession number; infant's last name, first name, sex, birth date, date of collection, feeding type, clinical information (transfusions, antibiotics); mother's last name, first name, maiden name, date of birth, address, telephone number; provider's last name, first name, address, telephone number; laboratory accession number; date of specimen; recall screen status; sample acceptable; follow-up staff notes; initial screen and recall screen lab results; diagnostic testing request and results; request for payment authorization; date of death, letter of screening result notification; diagnosis and treatment.

RETENTION

DISPOSITION

RETENTION AND DISPOSITION AUTHORIZATION

Retention and disposition for this series were specifically approved by the State Records Committee.

APPROVED: 08/1999

FORMAT MANAGEMENT

Computer data files: Retain in Office for 21 years and then delete.

APPRAISAL

Administrative Legal

This disposition is based on the administrative and legal value of these records to the agency until the subject of each record attains 21 years of age.

PRIMARY DESIGNATION

Exempt. Utah Code 26-3-7 (2013)