AGENCY: Department of Health and Human Services. Utah Public Health Laboratory. Newborn Screening
SERIES: 82241
TITLE: Screening case files closed to interactions
DATES: 1979-1993.
ARRANGEMENT: by testing category
DESCRIPTION: State statute 26-10-6 (1)(a) (b)(i)(ii) requires each newborn infant to be screened for phenylketonuria (PKU) or "other metabolic diseases which may result in mental retardation or brain damage". The individual's chart documents all medical information and actions that were taken in identifying individuals with laboratory screening results that were abnormal, inconclusive, or of insufficient quantity for testing or normal recall screening, or if an individual is deceased. Data are used to notify providers and families of initial abnormal, inconclusive, or insufficient quantity test results, and of the final disposition (normal or deceased). The case files also track request/release information, other notifications of specific individuals, refusals of screenings, etc. The data may include type of form; kit ID number and bar code; accession number; infant's last name, first name, sex, birth date, age at time of specimen draw; feeding type, clinical conditions (transfusions, antibiotics); mother's last name, first name, maiden name, date of birth, full address, telephone number; provider's last name, first name, provider code, full address, telephone number; laboratory accession number; date of specimen; recall screen status; results normal; sample acceptable; nurses notes; initial screen and recall screen lab results; date of death; letters of screening result notification.
RETENTION
Retain for 21 year(s)
DISPOSITION
Destroy.
RETENTION AND DISPOSITION AUTHORIZATION
These records are in Archives' permanent custody.
APPROVED: 12/1987
FORMAT MANAGEMENT
Paper: Retain in Office for 1 year and then transfer to State Records Center. Retain in State Records Center for 20 years and then destroy.
APPRAISAL
Administrative Legal
UCA 78-14-4 sets a maximum four year limitation for malpractice action. UCA 78-14-4(2) specifically applies this limitation to minors. However, several court decisions have held that the statute does not begin to run until the plaintiff knew or should have known about the cause of action. In the case of a metabolic disorder, if left untreated, symptoms may not occur until adulthood. This sets the parameters of the total retention.
PRIMARY DESIGNATION
Exempt. UCA 26-3 (2008).